Rare Disease Day is an annual, awareness-raising event coordinated by EURORDIS at the international level and National Alliances of Rare Disease Patient Organisations at the national level.
The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
Feel free to send flowers and chocolates to Pearlsky.
My thoughts will be with you and Pearlsky and David tomorrow, as always, actually.
My girl will be 14 soon and I’ve never heard of this day until Today…..guess my head has been buried in the sand.
Who knew? Cool video. Thanks for sharing.
Sweet video. My boys and I just watched together.
I mean this in only the most kind and concerned way, and I don’t want to put undue pressure on you, but POST dammit.
I mean this in only the most kind and concerned way, and I don’t want to put undue pressure on you, but POST dammit.
Neat video, thanks for taking the time to have this blog and share your thoughts.